Pineal Cyst Awareness
Tackling the problem head on
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Now, Tell Me Again That Pineal Cysts are Incidental!
Dylan Neilsen
2012
Dylan Neilsen was a healthy 12 year old boy until one day a rare illness - a pineal cyst tumour on his brain - took control of him. His parents turned to local doctors for help, but they say the health care system that was supposed to help Dylan almost killed him. Heather Yourex reports.
8 Yr old Courtney Wilson
2013
In August 2012 Courtney suddenly developed double and blurred vision. She was admitted to Hospital where her symptoms progressively worsened to include numbness & tingling of the face, arms & legs, the feeling & hearing bubbles popping in her brain & body, tremors of the hands and legs, severe headaches, extreme fatigue,sleep disturbances, flashing lights in her vision, "wavy vision", large coloued floating spots & a permanent "coloured fuzz" in her vision, mood swings & behavior changes, pains in her ears, pain & pressure in her eyes & pressure in her forehead....
Christa's Pineal Gland Brain Cyst
2012
Fourteen-year-old Christa experienced a debilitating bout of headaches over the course of two weeks in 2008. She underwent an MRI and doctors found a cyst in the pineal gland region of her brain, in the exact center of her skull.
Mikayla Curran
2014
Meet Mikayla Curran. Eleven years old, Mikayla has repeated told her parents she wants to die. “To go and be with grandma,” in her words. One year ago, the Wetaskawin honour student was athletically and socially active, keen on swim club, camping, boating, books, horses and of course, hanging out with her sister and friends. But then the headaches started, a daily throbbing similar in intensity to a migraine...
R.J. Kahaunaele
2014
LOOMIS – R.J. Kahaunaele may be one of the most confident 12 year old's you'll ever meet, especially considering he has a brain tumor most surgeons won't touch.
The 6th grader has a pineal gland cyst, a growth, right in the middle of his brain. Surgeons all across California have been too afraid to remove it."(I get) headaches, double vision and stabbing pains in my eyes," R.J. said "Sometimes really bad pain starts to show up everywhere."He was just 7 years old when those extremely painful headaches began. Double vision, uncontrollable twitching, muscle spasms and more followed. About two years later, a MRI found the pineal cyst."It makes it hard to move, and it makes me real dizzy," R.J. explained. RJ's family, particularly his mom Janice Kahaunaele, have taken him to neurosurgeons across California. All said they couldn't, or wouldn't, operate.